After several years of feeling “not myself” and several blood tests were done that were all NORMAL, I finally found an amazing doctor who tested my TSH levels and determined that my thyroid was low. he put me on Cytomel 25mg once a day and six months later retested me to only find my thyroid had dropped. he doubled my dose and just recently was told that it had dropped again. I am going today to see him and possibly be put on an additional medication. I am very concerned as to why my test results keep dropping. I don’t really understand that. In 2011 I had a biopsy done on my thyroid because they found 3 large nodules that turned out to be benign, however, my doctor suggested that I revisit my endo. No one has put a name or label on anything and I am trying not to get scared, but I am unsure what I am dealing with.
Hello, I have Hashimoto’s. I am aware that I have had this disease for approx 19 years. I never took it seriously because all my doctors didn’t. But as of the past 6 years and have 3 more children I have not taken it so lightly. I have been nothing but a roller coaster of a mess. But again the doctors don’t seem to take the disease or me seriously. So I get to wake up every day in complete pain both physically and mentally. It takes everything out of me to be a mother. I’m not who I used to be and it’s slowly killing my marriage and relationships with others. I have recently switched docs…again! And I’m praying that the switch from Synthroid to nature-thyroid is going to help me.
Living with Hashimoto
Hi…I’m a Hashimoto pacient…I’ve been living with this disease for a decade now even if I’m still very young…I’m 25…I had 10 miserable years running between hospitals doctors and chemists…I’m not able to get out from this frustrating chain of brain fog tiredness and depression. …I need to get my own life back on the road. ..I want to study…enjoy life….have babies…and be happy. ..I want a happy end….
My doctor once sent a report back to my family doctor saying I had “psychological problems” and was a hypochondriac.
– I have an amazing doctor
– I’m taking Erfa Thyroid
– I’m on a paleo diet
Never felt better.
There is better care out there. It might take some time to find it, but it exists, and I hope it will start to be the rule instead of the exception.
The Battle Goes On
It all began in 2003, my mom suggested that I see a gyno now that I was 18 and at college. So I listened to my mother, a nurse. At my appointment the gyno examined my lymph nodes and thyroid. She showed me in a mirror that I had a lump in my thyroid and that it was most likely thyroid cancer. WoW! Way to drop all of that on an 18 yr old. Diagnosing my problem wasn’t hard. I saw an endocrinologist immediately and he did a worthless needle biopsy… he made my neck spurt blood! The tumors were growing rapidly and needed to be removed ASAP because if they didn’t become cancerous they would grow large enough to suffocate me.
They removed 90% because they weren’t sure if they were cancerous yet or not. The path traveled after surgery has been tiring and defeating. I was put on medication and my levels were within the “normal” range (very low end). Since my thyroid was removed I am sick all the time, weight gain, hair loss, and depression. My endocrinologist would not alter my dosages so we set out to find a new doctor, but no other doctor would touch my dosage because I had already been to a specialist. Then one doctor took me off my thyroid meds altogether and put me on anti-depressants…. I got the pleasure of trying several brands and dosages before I gave up on them. It is now 10 years later and I am still struggling to find a doctor to put me back on thyroid meds.
I began doing my own research a few months back when my doctor told me my levels were normal on the specific dose he gave me and so I “didn’t need to come back for a year”. I’ve been told I have Thyroiditis. I kept having symptoms and yet he claimed my TSH levels were normal and wanted to put me on an antidepressant. I discovered a couple of physicians that opened my eyes to Hashimotos and told similar stories of patients who gave their case closed because of normal test results and yet suffer with symptoms. I will be seeing another dr in the next few weeks to follow up and hopefully get some more answers. One thing that seems to really help is being on a gluten-free diet and from what I understand it has helped several other thyroid sufferers. If anyone is interested, the book that has helped me tremendously is called ‘The Thyroid Solution’ by Dr. Ridha Arem, M.D. He runs a practice in the Texas Medical Center. Amazing book. Also Dr. David Clark has several you tube videos that are so helpful and practices in North Carolina.
Thank you for creating this website. It’s about time people started listening 😉
The end of Western medicine
The year I aggressively pursued my diagnosis, I saw my primary care doctor five times. I saw a Rheumatologist who ruled out Lupus and RA. An Endocrinologist diagnosed Hashimoto’s, but six weeks later told me that my lingering symptoms were not thyroid related. I went back to the Rheumatologist, who ruled out other autoimmune disorders. I then saw a Neurologist who ordered an MRI and ruled out MS.
When I returned to my primary doctor, she told me I had reached the end of Western medicine. I was still sick.
Having exhausted insurance-covered medical care, I paid out of pocket to see a functional medicine doctor. He ran a full thyroid panel and tested my cortisol levels, vitamin levels, and other hormones. He helped me refine the Autoimmune Protocol diet to help my body heal and recommended supplements that allowed me to reverse my symptoms. Within a month, I was on the road to healing.
Why do we have to travel past the end of Western medicine to feel better?